HomeNewsUK NewsPride of Britain AwardsPride of Britain: Mum who fought to find a cure for the illness that killed her boysKaren Johnson lost both her sons to degenerative condition Hunter’s syndrome but battled on to raise more than https://www.pradasoutletcheap.com 2.6m to fund a treatment22:23, 2 AUG 2015Updated22:24, 2 AUG 2015Patron: Denise Welch nominated Karen for the award (Image: Andy Stenning / Daily Mirror) Get daily updates directly to your inbox+ SubscribeThank you for subscribing!Could not subscribe, try again laterInvalid EmailWhen Karen Johnson’s six year old son Simon was scouted by Manchester United, it was a bittersweet moment. “He was a really talented footballer,” she says.”The scout said they would be interested in having him on their youth side.”But I had Prada Outlet to tell them he wouldn’t live that long. In fact, he’d never get old enough to play professionally.”Although energetic Simon appeared healthy, he had a degenerative genetic condition, Hunter syndrome.The rare disease went on to slowly rob him of the ability to walk, talk and eat, before killing him.Karen was eight and a half months pregnant with her second child when Simon was diagnosed aged 18 months.She was told there was no cure, no treatment and little research being done.Worse, the son she was carrying also had the same condition.(Image: Andy Stenning / Daily Mirror)”It was horrendous,” says Karen, now 55.
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